November 30, 2009

WOW I can't believe a entire month has flown by. Let's see Kristin lost her first tooth and is working on her second one. Joshua is difficult to handle some days. He is always hurting his head. He has had a full evaluation done on his hearing...he passed with flying colors. This Thursday he will go have a cookie swallow done and next Tuesday is his Upper GI then on January 21, 2010 he will go and have a behavioral evaluation done. His temper gets the best of him some days. We had a good Thanksgiving even though Kristin was with her dad. Joshua didn't eat much. Oh that's another thing Joshua went and saw his GI specialist and he prescribed MIRA LAX once daily to help his bowel movements. I always feel as if he is at one doctor or the other. Now our weekly routine is as follows..Monday 9:15am-Speech then Wednesday 12:45 OT and at 1:45 Behavioral. And everyday at 3pm when I picked up Kristin from school her girlfriend comes home with us until 6pm. By the time 8pm bedtime rolls around I am ready for bed too. We are waiting to see if we qualified for funding for a weighted blanket and trampoline for Joshua to help with the sensory disorder. Until next time take care yins....

Oct. 26th 2009

Hey yins...well last wed. Joshua had his first OT session and we wont know until he has a few more what all they will consist of, but he likes his therapist so that is a major bonus. We went to my friend's little girls birthday party on Saturday evening and Joshua, well he thought he would be spider man and fell , busted his right ear and the side of his forehead. He's got a large black bruise and his temple area and his right ear is a little bruised. i swear that boy is going to give me a heart attack before I am 30 years old. Halloween is approaching faster than I wish...Joshua is going to be ELMO and Kristin...TINKER BELL. that is if she doesn't get any worse with her new cough. I am doing good selling Avon...please anyone who visits this site, take a peek at my Avon one too. Well it is late and I am exhausted so until next time.....

October 18, 2009

Let's see, Kristin is excited about Halloween and Joshua was diagnosed with yet another disorder. Joshua still has Speech therapy but no longer has Physical therapy. We start Occupational therapy this week for his newly discovered Sensory Disorder. In November, he has his third hearing test to see how his right ear is and also an appointment with his GI doctor. Over the last few months Joshua has experienced bouts of extreme diarrhea that then change into extreme bouts of constipation. He will scream for 45 minutes trying to pass a stool. It isn't normal for him to have to push that hard for a bowel movement. Joshua doesn't talk very well, it is hard to understand him. So days are better than others. He is short for his age and has a head that seems "big" for his little body. After all that this little boy has been through, he still smiles almost everyday. I watch him and wonder, what will his future hold and will he ever be "normal". I know that no matter what life throws at him, he will always get through it. Thanks to Joshua I know that I can get through anything. His father and I are very grateful for him, we know he will over come his battles, it might take a while but we work as a family. Joshua is our little hero. And tomorrow is another day....

2009 catching up to now...

This year so far has been eventful, Dave and I were married on April 13, 2009. We had a small private wedding with the kids right there with us. Kristin turned 5. Joshua turned 2. And we moved back to Pittsburgh at the end of July.

Kristin started school. She loves it. Joshua's favorite part of the day is when she gets home from school and he has someone to play with. The move has been good to all of us. Joshua is now closer to his hospital.

Rest of 2008

Joshua also ended up needing Speech Therapy along with the Physical Therapy. He started walking shortly after his first birthday. We were finally able to have him circumcised in May 2008, shortly before his first birthday.

Joshua's 1st birthday

May 30, 2008....the big 1. We had a small birthday party for Joshua and Daddy. They shared the cake, which had Mickey Mouse on it. It was nice a day to forget all about any problems that still existed. We reminisced about the last year and all that we had been through. it was a good day.

February 2008

The winter was long and full of PT. By February we had noticed that Joshua's head wasn't shaping correctly. We talked to his doctor about this and once again went to see another specialist who explained that Joshua had Phelgeocephly, flat head. From his right ear to the middle of the back of his head was completely flat. We then began the process of the helmet. We had his head casted, and picked out the design for it. We waited about two weeks and then took him back in and Joshua had his new helmet. He was to wear it for 23 hours a day. Wash it by hand and allow it to air dry. Joshua didn't mind the helmet at all, until about 4 months later. Joshua decided that mickey mouse liked to hide in the helmet more that he liked to wear it. We would go in his room to get him in the mornings and after nap times and always we would find mickey mouse sitting in Joshua's helmet and Joshua smiling at us. By this point his head was definitely better, but could still become rounder, we let him win this battle. After all, he was our little hero, and he had already been through so much.